happy family day!



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We celebrated Emily’s 10 year family day this past weekend!
Wouldn’t you know when I was taking her picture her biggest fans wanted to be right beside her.
(Because that’s what family’s all about!)

making progress



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We made a day trip for Emily’s five month post-op appointment last week.  She’s been working really hard at her weekly physical therapy appointments, and we were excited to see what the surgeon thought of her progress.

He was really pleased with the work she’s been doing and made a couple of modification to the braces she wears.

I think Emily’s getting used to wearing the braces, and the support they offer.  I love that she’s mature enough now to know this is just part of the process in helping her to get where she wants to be.

baby steps



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Emily had a wonderful week of intensive physical therapy.  She’s basically re-learning how to walk.
Because she had so much work done on her legs, they don’t function in the same way they used to.
She’s walking a little bit every day using a walker and continuing to do her exercises to strengthen her legs.
Emily will continue to do physical therapy weekly.  It’s been a lot of work, but she’s making progress
in walking in a way that makes her feel more confident and independent.

happy birthday emily!



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 Emily turned 14 years old today!

We love you Emily; hope this day and everyday is a great day!

emily – update #2



IMG_3416Emily is on week 4 of recovery and doing much better now.  We went last week to Shriner’s Hospital for her follow-up appointment.  They removed her casts, did some x-rays, had her fitted for AFO’s, met with her doctor and physical therapist she’ll be working with, and had new casts put back on.

Her doctor is pleased with the healing of the bone and she’ll start intensive physical therapy in about 3 weeks.

Despite the fact that she’s been bed-ridden for over a month now, she’s handling it well and counting down the days of being free from her hospital bed.

emily – an update



IMG_3338Emily is two weeks post surgery and her legs are healing nicely.  However, she’s had unrelated serious issues since surgery that have sent her to the emergency room twice and a dear family doctor’s office at 9:30 at night.  (Our doctor feels certain that with time things will improve.)

Knock on wood, I think things are starting to settle down a little bit around here.  It’s felt like we’ve been running a marathon for the past 14 days and let’s face it, Trey and I aren’t spring chickens anymore so we’re ready for some easy, if you know what I mean.

I think Emily is excited about the prospects of getting her casts off and walking with more mobility and freedom, and that’s what it’s all about.

emily’s surgery



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Emily’s surgery on Wednesday went really well.  She will be in bed healing for 3 weeks
and then we’ll go back to the hospital to see how she’s healing, get her fitted for AFO’S and
put 2 new casts on her. Emily will wear the casts for another 2 weeks while we wait for the
AFO’s to be ready, and then intense physical therapy will begin to re-learn how to walk.

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It’s been a pretty rough few days with an unexpected trip to the ER and trying to figure
out how to care for Emily.  I’m so very thankful to have such a wonderful and supportive
husband.  I don’t know what I would do without him.  I’m also thankful for Shriner’s
Hospital, where Emily received the best care possible.  They’ve shown our whole family
such love and kindness.  Shriner’s is truly a unique and special hospital and we are
so grateful for their care.

a beautiful smile



IMG_3254Emily got her braces off this week.  Her smile looks gorgeous and she is tickled with how they look.

Emily has a lot going on this month.  She’s having major surgery to give her more mobility in her legs.  We’re all super excited for her.

She’s going to spend two months in two full leg casts and then undergo intense physical therapy to re-learn how to walk.  It’s going to be a tough couple of months, but we know it will greatly benefit her future.  We would so appreciate your prayers for Emily this week and in the coming weeks of healing.

happy thanksgiving



happy-thanksgiving

emily



img_20161101_135302266Last week was a crazy-busy kind of week, filled with dr. appointments and activities.  On Tuesday we headed out of town to a wonderful children’s hospital that specializes in caring for children with cerebral palsy.

We all feel (including Emily) like she would benefit from surgery to lengthen her tendons in the backs of her knees and ankles to give her more movement.  Her doctor also recommends cutting and realigning her left tibia bone.  This surgery is a big deal.  She’ll be in a double cast and wheel chair bound for 6-8 weeks.  After she heals, she’ll start rigorous physical therapy to basically learn how to walk again.  She also has scoliosis which will most likely be addressed once she has healed.

It’s a lot, but I think we (most especially Emily) are all excited at the prospects of her gaining more mobility and freedom.

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